Services and Programs
Pediatric Hematology/Oncology
Resources for Patients and Families
- CURE
Childhood Cancer Association : Improving the lives of families coping with cancer or chronic blood disorders by providing emotional, educational, and financial support.
- Camp
Good Days and Special Times: This organization
reaches out to children in our community who have been
affected
by the challenges of illness or violence, and provides them
with a fun camping experience. Campers experience all
the traditional
camping activities such as hiking, sailing, fishing and arts
& crafts at our Keuka Lake facility. The camp also features
a Project Adventure ropes course, a handicapped accessible
swimming
pool, miniature golf course, areas for music, nature and computers.
Most of all, Camp Good Days has top notch staff and volunteers,
making it a truly special place.
- The
Corporate Angel Network: Through this organization,
out-of-town cancer patients are able to travel to their treatment
center or hospital using the empty seats on corporate jets.
- Make-a-Wish
Foundation: The Make-a-Wish
Foundation is a non-profit organization that exists to
grant the special wishes of children facing life-threatening
or terminal illness. Children can be referred to this
program by contacting the foundation themselves, or by
a parent, legal guardian, or medical professional.
Online Resources for Kids
-
www.lightingchildrenslives.org:
This web site profiles children currently fighting cancer,
and
allows them and their families to share their thoughts, emotions
and hopes in order to help and inspire others.
- www.kidskonnected.org:
This is a support organization for children who have a parent
undergoing cancer treatment. The site offers chat rooms, a newsletter,
and information on various events.
- www.cancersourcekids.com:
This web site includes channels designed for children, teens
and
parents. The site offers insight and advice from teens dealing
with cancer, age-appropriate information, and some online games
and activities.
Online Resources Adolescents and Adults
- www.teenslivingwithcancer.com:
This site focuses on supporting teens through the unique challenges
they face in dealing with cancer. The site includes supportive
links and personal stories.
Online Resources for Parents
- www.sturgecancer.org: This web site provides information about your child's diagnosis, treatment, and tests. It also provides information about support groups and services available to you at Golisano Children's Hospital.
- www.squirreltales.com:
This web site allows parents of kids with cancer to give and receive
support and encouragement and share the practical things that
help them cope with daily life after their child has been diagnosed
with cancer.
- www.makeachildsmile.org:
This organization provides emotional and financial support to
families whose children suffer from chronic or life-threatening
illnesses, and provides opportunities for others to reach out
to these families through sending cards or gifts, or making donations.
- www.all-kids.org:
This web site is designed specifically for parents of children
diagnosed with Acute Lymphoblastic Leukemia, and provides a safe,
friendly and caring place to discuss issues specifically related
to this type of childhood cancer.
- www.acor.org:
The Association of Cancer Online Resources is a collection of
online communities designed to provide timely and accurate information
in a supportive environment. Provides contacts for mailing lists,
online resources and support information, as well as information
on types of cancer, treatment options and ongoing clinical trials.
- www.nationalchildrenscancersociety.com:
The National Children's Cancer Society (NCCS) provides financial
support to children with cancer and their families, for expenses
related to cancer treatment. The society assists children from
birth to age 18 and their families throughout the United States.
The web site offers information on the organization as well as
message boards, information on special events and helpful links.
- www.patientcenters.com:
This web site provides information and resources on various diseases
including childhood cancer and leukemia. The site offers book
suggestions as well as information on current clinical trials
and provides access to various newspaper and magazine articles.
- www.candlelighters.org:
The goal of Candlelighters Childhood Cancer Foundation is to educate,
serve and support the families of children with cancer, survivors
of childhood cancer, and the professionals who care for them.
The web site provides a wealth of information on treatments, events
and advocacy, as well as links to sites specifically geared to
kids and teens.
- www.marrow.org:
The National Marrow Donor Program facilitates life-saving blood
stem cell transplants for patients who do not have a donor in
their family. They provide the products and services that bring
patients and donors together through life-saving technology. The
web site offers links to recent news and upcoming events as well
as real-life stories of those who have been through the donation
process.
- www.cancercare.org:
This web site offers information, workshops and counseling for
those living with children with cancer. The site addresses these
main needs: counseling, connection (Q&A), information on financial
assistance and medical information.
More
Online Resources
Local
and National Cancer Organizations
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